The story of Kelsey
In 2015 I was diagnosed with Chiari malformation. I had 3 concussions that led to this diagnosis. I was having severe headaches, dizzy every night and day. I was 11 at the time and this was terrifying! I had went to my local eye doctor and that’s when he noticed spinal fluid building up behind my eyes he referred me to a doctor at my local children’s hospital and they looked and did every test and he wouldn’t let me leave because of the amount of fluid built up behind my eyes. He called my Neurologist and they let me go home but I had to see him on Friday. I went and he told me I had to have the decompression surgery the next day or else in two months I would have gone blind! I had that surgery was in the ICU for 2 days and outpatient for 3 days! I got my strength back and was eating and they let me go home! Just this past month has marked 5 years since I had my surgery and thankfully for me it was cured by the surgery! And now I spread awareness about my rare disease and that others are not alone! 🙂