The story of Susan
My husband was diagnosed at age 29 with a chordoma clivas. In the last 12 years he has had 7 brain surgeries, 3 plastic surgeries, and double vision correction surgery. We have lived in Boston and Chicago so he could receive proton radiation. Every 3 months he gets an MRI to check for growth. There is no other treatment for this type of Cancer other than surgery and radiation. This is his rare disease.