The story of Vidisha

I’m Vidisha. I’m 33 years old and I’m a doctor in India.

My journey with PH is recent but I have sarcoidosis since 2015. 

Despite me being a doctor, it took 4 years to get to the diagnosis of PH.

Which made me realise the abysmal level of awareness regarding PH amongst doctors.

 

Currently I’m on a sabbatical and at my parents’ home, who have my backbone and my champions throughout this torturous journey.

Since my PH is severe,I have been advised to register for lung transplant as soon as possible and like any human being my heart is full of fear and apprehension; about the prohibitive costs and my survival post surgery.

But I’m keeping my faith. In 2017 ,I survived a respiratory failure, pulmonary thromboembolism and pulmonary tuberculosis. I was on ventilator but I managed to walk to work after 3 months.

I’m sure that I’m alive today for some reason; maybe to be a buttress to someone’s dying faith, or to inspire scientists to discover the natural history of this disease, or maybe to just love people around me. 

Whatever the reason may be, my lamp will burn brighter everyday to inspire the world around me that even the darkest night will end and the sun will rise.

This is what makes me rare:

I’m rare because I completed my MD while I had this disorder and cleared it in first attempt. I did not give up on my dreams.

I’m rare because I kept working despite my disease because I know it has captured my body but my soul is still raring to go.

I’m rare because I have sarcoidosis, and I developed severe PH without pulmonary fibrosis.

I’m rare because come what may, I will never back down.

 

*Find others with Pulmonary Hypertension (PH) on RareConnect, the online platform for people affected by rare diseases