The story of April
Alec was diagnosed on February 3, 2017 with Myhre Syndrome after being called a medical mystery by a leading hospital for children. He made the front page of The Old Colony Memorial in May 2018. Here is the article:
http://plymouth.wickedlocal.com/news/20170519/how-to-help-local-boy-suffers-from-extremely-rare-disease
*Find others with Myhre Syndrome on RareConnect, the online platform for people affected by rare diseases.