The story of Casey
I had encephalitis, meningitis adenovirus all before I was 2 years old. Growing up I dealt with asthma and multiple pneumonias. I was on birth control when I had my three pulmonary embolisms at 25. I was having shortness of breath and chest pain at work, but just assumed I was coming down with bronchitis or pneumonia. I was still having multiple infections and finally I found a team of doctors who believed in me and was diagnosed with common variable immune deficiency. I needed to have a power port placed for the immunoglobulin treatments. I then as a result had a VTE, after the surgery in my jugular. This became even more complex as I went into hypovolemic shock after a ovarian cyst ruptured. I also have Factor V Leiden a blood clotting disorder This is the life I live constantly, five years later and still doing IVIG treatments monthly I am needing to have my port replaced. I still have break through pneumonias requiring either oral or IV antibiotics as I have bronchiectasis and pseudomonas always in my lungs . I have to be on anticoagulants the rest of my life. I try to stay more positive. I have learned to Always Listen to your body – you are the best advocate for your own health.