My son had 2 rare diseases

The story of Jennifer

My son was born with Chondrodysplasia Punctata (CDPX1) a rare form of dwarfism and Epidermolysis Bullosa Simplex (EB). EB kids are known as Butterfly kids because their skin is as delicate as a butterfly wing. The complications from the CDPX1 ultimately ended up taking his life.

Connect with other people living with Epidermolysis Bullosa – RareConnect.org