The story of Owain
Hi my name is Owain I’m a 16 year old boy from Milton Keynes and I have a condition called Noonans syndrome. Noonan syndrome is a genetic disorder that makes you shorter than normal boys and girls it’s not just children who have Noonans syndrome adults can have it to. But sadly there is no cure so I will have it for all my life. The good news is it doesn’t effect me doing what I love which is complying as a ghostbuster I’m also known as Cadet Wilks when I do complying I also like climbing when I’m older I would like to be a outdoor climbing enstuctor I’m also reseting money for the Noonans syndrome association and the Henry Allen Trust I will be taking part in a plane skydiving and a hike in the summer holidays.