The story of Michelle
Back in 2008, I had ended up temporarily paralyzed and was pregnant with my fourth child and who is my youngest son Joseph. I had also had a cardiac arrest. The doctors worked around the clock to determine what was exactly wrong with me. In all my life I always knew something was wrong but didn’t have a name to attach to what I experienced. So doctors came back and told me. Now what I have is more rare than MS or Parkinson’s. There was not alot of cases aka pedigrees known. My life is a struggle, I do use a walker for short distance and power chair for longer distance. But I’m grateful that myself and my son is still here.. technology was more advanced then and now than back when I was a little girl. I might have a disability but I call myself uniquely-abled as I don’t focus on what I can’t do anymore but what I can still do. It does affect my whole body and at some point my kidneys can fail but hopefully it doesn’t get to that point but if it does I’ll fight to survive. No matter what we face, we are Warriors and I believe in you all. Happy Rare Disease Day.. love to you all. Today is also my son’s Joseph 13th Birthday, a huge shout-out to him. I love you more than you know.