The story of Emily
I really don’t know how to start this story. The story I want to tell isn’t about me but my daughter Emily who is 24 know. When she was a child she would always tell use she was tired her legs hurt. Multiple doctors said oh she is just growing. Then at the tender age of 13 she began to have moments of extreme pain that would leave her in tear. This continued till she was 14 when finally found a doctor who would listen to me. It took use on a journey that I never thought I as a parent would take. Upon arriving at the out of town specialist she took one look at my daughter just walking and she said I have your answer. She then asked if we had a computer at home and I was like yes why. She said what I am about to tell you is something that you will want to google and start to educate yourself and family. This is when we learned that she had a form of the ehlers danlos syndrome called hyper mobility. I was like how isn’t this genetic. My husband and I have no symptoms of the disorder that we know of. She is know 24 and has learned to adapt. She holds down a full time job. She inspires me no matter how bad the pain gets she continues to wear a smile. I still try to educate myself and anyone who listens.