The story of Melissa
hello i am melissa, february is rare disease month let me tell you about my rare fatal brain disease. huntington’s disease is a rare neurodegenerative fatal genetic disease it is like having Alzheimer’s ALS and Parkinsons all at the same time. it usually affects middle-aged people but can affect children.
it destroys cells in the brain, affecting the ability to move, think, and behave. the disease gets worse over time, eventually rendering patients unable to live without assistance and leading to death.
this disease has absolutely no timeline at all for when your brain will start to deteriorate or when and the severity of the symptoms you will develop. every single person who has this disease has a completely different experience and progression with their hd than the next. the only thing we all share is being gene positive for a diease without a treatment or cure