The story of Elizabeth
The moment I became a patient advocate for the rare disease, I have been involved in numerous initiatives aimed at raising awareness.
Even with the ongoing COVID-19 pandemic, I understand that every opportunity to educate the public on rare disease will move the rare disease community forward.
I’m so fortunate to have an amazing support system made up of family, friends, and peers in the rare disease community! “Because of them, I am encouraged and empowered each day to share my experiences and play a pivotal role in advancing rare disease education and research.
“Living with a rare chronic autoimmune disease isn’t easy.“