The story of milette
My son has neurofibromatosis. he has had over 45 surgeries and has rods in his spine. Thankfully, and through with so much strength, he is attending college. This is a terrible, high maintenance illness that requires constant medical oversight because NF causes tumors, scoliosis and many other symptoms. Thank god and thank the dedicated medical professionals we have found, that he has made it so far!
Find others with Neurofibromatosis on RareConnect, the online platform for people affected by rare disease