The story of Constança
Hello friends! My name ia Constança and I live in Lagos, Algarve, Portugal. I was diagnosed with KAT6A, which is an extremely rare syndrome, which is why I need to undergo therapeutic, educational and medical intervention treatments, daily to get stronger and gain skills.
Until now we are only 5 in Portugal with this rare disease.
We are going to celebrate the Rare Disease Day with a walk in my town, Lagos.