The story of Michael
Hello! My story begins couple months ago when I finally got diagnosed with Cellularbalm Ataxia disease (form of OPCA). I am 26 years old and I have 2 kids. I went from being an normal average person taking care of my daily needs and I was able to work without struggle. Being able to be a good husband and father to my family. Then about a year later I noticed my tremors started then my ability to walk normal became a daily struggle. I can’t feed/drink without help or even walk. I have developed this pain that takes over my body. I can’t even move without being in pain. I have major depression due to the fact I can’t be the father I want to be for my children. And a husband for my wife. My wife encourages me to speak up and fight to find a cure for this disease. But I feel so hopeless in this fight. This disease has killed my sister and mother. My sister was 21 years old at the time. I truly hate this. I just want my life back.