The story of Alida
I have MHE a rare bone disease. I have had over one hundred bone tumors. And over thirty surgeries to remove them. A total elbow replacement in 2010. I live everyday in extreme pain. But I cope. And I have a great family that helps me when I need it. I thought I was the only one with this. Until I found support groups online. Then met several people with MHE. They are very close in finding meds that help. Maybe a cure one day. I pray it’s in my lifetime so that I can witness it.