The story of Anja

Hi, my name is Anja. I was born with the Mayer-Rokitansky-Kuester-Hauser Syndrome. That means I was born without having a womb and with a not fully developed vagina.

I am 1 in approx. 5000 women, so, I am not alone with that! However, I would like to share my story in order to encourage young girls to make up their own mind, what’s going to happen once they find out. I had an operation far too young, everyone around me desperately wanting to “help“ and “sort things out“. Well, it wasn’t things, it was me. My body, my feelings. And there was nothing to put right. It was simply me, being born they way I was. It is a tough situation, especially as a young girl. Arriving at an emotional consent for a possible opertion takes time – and why not? Back then, I didn’t know where was up and where was down.  So much comes with MRKH – shame, not knowing how to talk about it, kids! what about kids!?? So many questions, about womanhood. MRKH is so difficult to talk about, so – let’s do it more often.

If I had the chance again to take a decision about what to do or not to do, I’d take my time. Inform myself about the options I have – and there are a lot!  Surround myself with people who support me in finding my very own way. Learn to love my body the way it is, before I consider consent into an operation. And – talk, talk, talk about it!! That’s why I would like to encourage other girls and women to find their very own way. Thanks for having the chance to speak up here!