The story of Lindsay

I was diagnosed 9yrs ago with lupus profundos a rare skin disease.. I have been trying to get a diagnosis of systemic lupus but because the bloods says different they will not say it is that.. Now they say they want another biopsy to make sure it hasn’t changed.. I have been on methotrexate for over two yrs which has been no use amongst other meds over the yrs and numerous steroid creams.. So the diagnoses is lupus profundos with fibromyalgia, raynauds, ibs, with a bunch of other things.. So just thought I would get your thoughts