Losing my voice and speaking up

The story of Nora Sophie

I lost my voice due to a an extremely painful Rare Disease called Eagle Syndrome from one day to the next for years. It has been a long medical journey and unfortunately it’s still not over, but I started to raise awareness and many things happened that give me hope.

I got the chance to participate at TEDx Vienna last autumn. In my Talk I tell my own story, but also like to encourage others to tell theirs. I try to highlight the immense value of one of our greatest gifts: our voice.

Use your voice and tell your story