Living With CREST Syndrome

The story of Eleanor

I was diagnosed with CREST Syndrome in October of 2017 right after my 19th birthday. CREST, also known as Limited Scleroderma, is a rare autoimmune/connective tisssue disease. It’s not easy, almost nobody (including some doctors) knows what it is, and it’s incredibly frustrating. I can accept my symptoms, I can accept my bad days, I can accept all of my medications, and I can accept my limits. What I can’t accept is the fact that people just like me are not being believed, or properly diagnosed because not one doctor can put all of their symptoms together into one correct diagnoses. It’s time to change this and to let our voices be heard. I’m strong, I’m important, and I will fight. I’m aware that I’m rare, and that I’m a warrior.