Live for Today, Hope for Tomorrow

The story of Tiffany

My brother was diagnosed with Niemann-Pick Type C about 5 years or so ago. He had been experieneing symptoms since he was about 8. He’s one of the strongest people I know and just loves his family deeply. My mother takes care of hin with the help of some nurses sent by the state. He loves music and his favorite band is Bobaflex. We just want everyone to know about Niemann-Pick disease becaue even if it’s too late for him, it might not be for someone else.

 

*Find others with Niemann-Pick disease type C on RareConnect, the online platform for people affected by rare diseases.

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