The story of Joel
June 18, 2019 I went into the hospital with intense burning in my legs. Next thing I remember was waking up out of a medically induced coma on July 1, 2019. Over those days the doctors gave me a 10% chance to live. My kidneys, liver, blood and heart were under attack. My blood pressure was dropping hard. My heart stopped at least 4-times during the first week. The docs told my wife to bring in my daughters to say goodbye. Then the miracle happened. 4-5 IVIG treatments and lots of drugs later I was stabilized enough to come out of the coma. When I finally woke up, I had no feeling from the waste down, my hands and feet were easily 10x’s the normal size, I was extremely weak, I couldn’t stand without help. Today, I still have trouble walking, I need titanium braces to get around. I’m being medically retired from the military.
I was diagnosed with SCLS or Clarkson’s Diease.