The story of Dianna
Kari got sick when she was 17. She was complaining of a lot of pain. When the Drs ordered CT scans they realized her kidneys were full of kidney stones. I took her to see doctors at UVA, Johns Hopkins, Childrens in PA etc. In doing testing they realized she has medullary sponge kidney. Since that time Kari is now 23 and on disability because of this disease. She has passed 166 kidney stones. It is difficult to have a disease that causes so much pain because of the DEA, most drs are afraid to touch her. Drs at the Cleveland Clinic have told us if something doesn’t change she will be on dialysis in a minimum of 10 yrs. She and others that have this disease are just pushed off to the side. We need to find a cure and if not a cure at least a treatment to help people such as Kari. This disease causes kidney stones and infections, plus patients get obstructed stones. Kari nor anyone that has this disease can have a kidney transplant. We found out their names won’t even be put on the list for a transplant list because they were born with the disease. My child has never been able to date, she had a dream of being a teacher and working with small children and having children. This has all been ripped away from her because of this disease.
This disease needs researched and it needs taught to students studying to be Drs.
People like my child are the ones to suffer and it’s not fair. She literally sits around and waits for the next stone to drop.