The story of Cristina Rosa
Juju was diagnosed with CNL2 on May 28, 2021. He has such a big personality, and a smile and laugh that can light up a whole stadium. Juju’s diagnosis took a toll on him, and he has lost his ability to walk without assistance, he’s slowly regressed and lost some basic skills. It is a daily struggle to watch my son battle with this horrible disease. He loves to dance still, loves playing with his toys, and is very playful. Juju is such a loving kid, and there’s hope for the future. Through all of the trials and tribulations we still feel internal joy, although externally it may be hard at times. Our family will never lose hope and will continue to strive for what is best.