The story of Katriina
Ehlers Danlos Syndrome is a disease without any cure. We are told every day to fight, fight and fight.
There are thousands of myths of our disease. Dont believe any of those.
Please you all around the world. Try being open, understanding and helpful for even a one person every day. They could really need it.
I have a story of me being in my worst and trying to get to my doctor. This story started with me waiting for coach. Finally it came but there wasnt any seats left and I had to stand in a moving coach for 30 minutes. I tryed to ask a seat but anyone didint gave me a seat.. Finally I collapsed to the floor and still.. no seat. At the end of this journey I went to my doctor and cried for the hole session. I felt so bad. so so bad.
I went to home with a taxi. I didint have a choise and my money was waisted. I didint have any time at the doctor to talk about medicine or treatment.
All this just because you cant see my disease in daily bases. Just because I cover my supports when Im not at home or working..