The story of Kearyn
My name is Kearyn , everyone calls me Kicky i am 9
i am rare. i have NF type 1 (with inoperabled optic pathway gliomas), Noonans Syndrome , Advanced Glaucoma in both eyes ( registered blind), Renal Artery Steniosis , Moya Moya Disease , autism , feeding tube . My journey started as soon as i was born with being doagnosed with glaucoma t 2 months old. each year from there my list gets bigger and ive never had an appointment free month yet !! I have had many tests , scans , xrays and operations for my conditions and take alot of medications . im also tube fed due to ARFID . I love Sonic the Hedgehog