The story of Janee'

I have limb girdle muscular dystrophy of which subtype or damage cell I’m still searching for. Thankfully, my symptoms – loss of balance, walking becoming very hard to do, muscles leaving my body at a startling rate, uncertainty always in my mind, just to name a few. I’m lucky that my symptoms waited until mid life to rear their ugly head. I’ve had a active and sweet life until now. Questions are always rolling in my brain. I’m searching for answers. I want, demand if I can, a cure. I need a scientist, not Doctor. Please hurry up, my muscles and life depend on research that is much needed for me and others.

Find others with Limb-girdle muscular dystrophy on RareConnect, the online platform for people affected by rare disease