The story of deanne
I was diagnosed with Osteonecrosis a rare bone disease over one year ago. I have this disease in my hip and now it has continued to grow so I just completed an MRI at the hospital. I was also diagnosed with Osteoporosis with a high fracture rate. I am getting ready for surgery. I have been able to do physiotherapy in the swimming pool and it is painful but it has helped me to walk better and gives me much needed pain relief in the steam room. I find that a heating blanket helps with the ache in my bones so that I don’t half to medicate as an only option. I have also had the help of a massage therapist as well. It has been a very bumpy road and the loss of my employment meant homelessness, and struggles that my local offices didn’t choose to help with. The most horrible part of this struggle I’m sure others experience as well as my personal struggle is the loss of ability to do the physical things I once did and living in chronic pain is horrible.
The isolation that comes with having disability is also a barrier as their is not alot of people to be with you while you go through physiotherapy most days. I was left alone to do this struggle myself most people are very shallow. I grieve the life I once was physically able to do and I don’t accept the limitations that are now on my life it is horrible. I was told that this would be painful and that was an understatement. I have a good doctor and great surgeon that makes me feel more confident when I am so fearful. My hands and feet are starting to be affected and I ask myself why me and continue to feel like I am the most unlucky. I have successfully campaigned to have my community participate in rare disease awareness day by hanging posters and handing out ribbons. I am grateful to the church, library, discovery place, thrift store, and both retail stores for participating. A big thank you to Leanne and my surgeons office and my doctor too.