The story of Muhammad Dawood
My story starts with my daughter she had delayed milestone but at age 8 she developed PKAN2 symptoms which becomes worst and at last she expired at the age of 10 year, then Allah Blessed me with 2 kids all right then Dawood was born with the same symptoms of my daughter had, now He is struggling for life, Dawood is now 11y and completely bedridden, in Pakistan , we don’t have proper diagnosis, treatment, management, and medication, consultancy is to costly.
My wife is real hero in this phase of my life she is 24hrs engaged with my son. Just have hope for any cure.