The story of Kelly
We are pleased to present to you the documentary, “Growing up with LGMD”, featuring Sophie, Brooklyn, and Sammy. These young ladies all live with Limb-Girdle Muscular Dystrophies (LGMDs), a group of rare genetic diseases characterized by progressive muscle weakness that affect the muscles around the hips and shoulders. We are grateful to Sophie, Brookly and Sammy for sharing the stories of the challenges they face while living with this ultra rare muscle wasting disease. As we celebrate Rare Disease Day, we want you to know you are not alone – stay resilient, stay strong and stay hopeful.