The story of Melissa
Hi my name is melissa, missy is my nickname. I am 16 years old and was born 2 weeks early I do gymnastics and dance. I have been doing gymnastics since I was 3 and have taught myself gymnastics. I was in a class but my leg pain was too bad so I stopped so now I just teach myself everything. I started dance at 14 and have never slept a full night ever in my life not even as a baby. I have ADHD,sensory processing disorder, global development delay, scoliosis,plantar factitious, patella femur syndrome, ehlers danlos syndrome chiari malformation, migraines and hyper mobility. I live with my mom sister and dad and in December 2024 I was diagnosed with ehlers danlos syndrome (Eds for short). July 4th 2024 I got some rashes on my legs and ever since then my health issues got worse with no reason at all. So I was in the ER every week and at the doctor every month trying to find answers and my mom was helping me to since my dad had work to do but he still helped too. And I had lots of tests done, tons of IVs and blood work done a MRI, and CTs because my blood work wasn’t okay and kept coming back abnormal so I went to see hematology and when I got bad headaches I also had to see a Neuro surgeon and neurologist in Dallas so my hematologist, neurologist were all in Dallas at children’s medical Center in Dallas and I was also tested for cancer which came back negative so that’s good and had 21 blood tests done in one day. So after all of that plus random throwing up tons of nausea, numbness, neck pain and head pain I finally got my results which are chiari malformation, migraines, hyper mobility and ehlers danlos syndrome. My neurologist diagnosed me with those 4 things. I had my 1st pain management appointment in January and I go to see another neurosurgeon in February and more pain management in march. This is a very new journey so please pray everything will be okay with my health!! 💝💝💝💝