The story of Beatriz
Hi! I’m Beatriz Kaori Miyakoshi Lopes and today I’d like to share a bit of my experience with FD/MAS – what was the diagnosis like, my life and challenges and much more. What an odissey this was! My history with these two very rare and chronic conditions started before I was born – except I didn’t know about it yet and neither did my parents!
As with all people with either FD (fibrous dysplasia, a bone disease) or MAS (McCune-Albright Syndrome, that includes the bones, endocrine system and skin), you’re just born that way – but where it happens, how it affects your life and even when you find out varies greatly from person to person.
In this article together with the American FD/MAS Foundation, I go over my history: https://biakaorimi.com/en/blog/fdmas/fdmas-beatriz/