The story of Cj
Hello fellow rare disease fighters! I was diagnosed with Ehlers Danlos syndrome at 17 in 2011. After having 5 unnecessary surgeries we finally got a diagnosis. It was a long time coming, something that would change my world. Having chronic pain and subluxations I was unable to keep a job at 18. Three years later I was granted SSI. I also have dysautinomia. I am incredibly lucky to have found many groups of fellow eds fighters so I know I’m never alone. Awareness and support are the most important thing in a life like this!
Connect with other people living with Ehlers-Danlos Syndrome – RareConnect.org