The story of Fraukje
My husband died due to heartfailure because of ARVC. Age 42. 3,5 years ago, our son was also diagnosed with ARVC. Age 13. I want for him a longet and better life than my husband had. So I will not stop spending all my energy in the German patient advocacy, translating documents to get all German patients into a European ARVC registry, to set up new networks of scientists, to support a great Dutch scientist: Rogier Veltrop.