The story of Kevin
Living with Gardner Syndrome has become a challenge by itself in 2018. I had the IPAA surgery back in 1993, at the time, the doctors told us once it was done you would never deal with the syndrome again, never did it think I would be in the position I am in now. Here in Canada, it seems like there has been almost no advancement in the last 30 years.
We are now in 2019, my two daughters live with this disease as well and they are now both a basket case here in Canada, some how their condition is only seen in adults that are 3 times older than them and as parents we must keep positive and moving forward.
My youngest daughter and I almost lost our lives last year due to complications with our surgeries. I decided to learn as much about this disease as the doctors that treat us. We need to keep challenging them and providing them with information from around the globe. Since we need to make decisions for myself and as parents, we need to make the best choices for our kids, not something that should only be left to the doctors.
This disease is a curve ball, you never really know what to expect. It helps to keep positive and what helps us out on most days is to realise that there is probably someone out there that has it worst then us. Keep on the sunny side.
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If you need to chat look me up on facebook
https://www.facebook.com/kevin.lacombe.92372 .