The story of Laura and Robert
We are a senior couple, each with a newly experienced rare disease.
My name is Laura Worth. I am 67 and I am in a several-year process of diagnosis of muscle wasting and weakness. I’m told by my doctors that this is most likely either sporadic Inclusion Body Myositis (sIBM) or Limb Girdle Muscular Distrophy. Other than this, I’ve enjoyed great health.
My dear life-partner of 37 years, Robert Bornn, otherwise also in excellent health, recently suffered two brain seizures, with a frightening diagnosis of Temporal Lobe Epilepsy.
Robert is the musician, film maker, and “engine” behind our improvisational dance movies and I am the dancer, much surprised by my newly discovered fascination with creative dance.
We are each unexpectedly exploring the challenges of our new situation by pushing our limits to foster our continuing growth as we explore what these challenges mean.
We hope you will enjoy our dance movies! If the Rare Disease Day organization can find a way to use our improvisational music and dance movies to help others, we would love to think we can make a difference with them.
Our movies and detail about our stories are at https://www.gofundme.com/keep-laura-dancing .
Or our YouTube channel is at https://www.youtube.com/user/HerGratitude . Our dance movie, “Courage” is at https://youtu.be/8FJKCFV8Kq8 and “Inspiration” (my dance in an early snow storm) is at https://youtu.be/Q2nO32L081k . We’re planning a third movie called “Transcendance.”
Please let me know if you have interest in our story and/or our original movies.
And thank you for your commitment to your good work!
With gratitude,
Laura and Robert