The story of chloe
i am 14 years old and i have ehlers danlos syndrome they are unsure what type i have because i have so many symptoms they also think i may have an autoimmune disorder. ehlers danlos syndrome is a connective tissue disorder witch affects the collagen collagen is what keeps you together and my collagen doesn’t work like that i dislocate or sublux on a daily bases it is also a very painful condition to have i get very easily fatigued to i also have heart palpations and very bad dizzy spells some days i feel very nauseous and don’t feel like eating very much i also come out in very wired rashes witch they don’t no what they are i also suffer from very bad headaches. there is no cure for ehlers danlos syndrome just physiotherapy and pain medications witch don’t help a grate deal
Meet others who understand on the international EDS community on RareConnect.org:
https://www.rareconnect.org/en/community/ehlers-danlos-syndrome