The story of Brian
I am a 40 year old Irishman who was diagnosed with Degos Disease in 2007. I would like to take a little paragraph to express a huge debt of gratitude to Judith (and Alan) Calder who run degosdisease.com. Following the diagnosis I would have slipped into depression and who knows what else only for the timely intervention of the website and then Judith herself. Researchers, Doctors and other medical professionals do fantastic work with rare diseases, but I would like to remind others, that the support we get from ‘ordinary’ people is as important. Together we are stronger.
Thank you Judith.
BG