The story of Hulda Svansdóttir
My name is Hulda and I am the mother of a 10 year old boy, Ægir Thor who has Duchenne muscular dystrophy which is an uncurable muscle wasting disease. We are doing our best to raise awareness about Duchenne and rare diseases so every Friday we dance and post it on social media. We’ve danced with friends and family, the prime minister of Iceland, famous individuals in Iceland and Duchenne families all over the world. We hope that along with raising awareness we can also bring joy to others.