Coats Disease

The story of Edgar

I have been diagnose with Coats Disease when I was around 12 years old and due to negligent parents I lost around 85% of my left eye vision.

I have 36 years now and for many years I tough I was alone in the universe and was really unlucky. I decided to make my disease public and that was no shame in having it.

Today after many procedures like surgeries, eye injections and lasers I can live a normal functional life ! I travelled across the Globe, I practice martial arts and have a normal life.

There’s life after the diagnose. Do not let the fears overcome you ! You are not alone !!