Carolis disease

The story of Leona Larson

Hello, My name is Leona (45 years old). Last year I was diagnosed with a rare congenital liver disease called Caroli’s disease. I have suffered for years with multiple symptoms, endless medical appointments, tests and surgeries. To be honest, I wasn’t that surprised when they told me I was born with this disease. I have had consistent symptoms since I can remember. I am grateful to have more knowledge and understanding of my symptoms however, there is limited research and information on carolis. I would like to speak out and share my story to help create awareness and to support others! My heart goes out to everyone that is battling a rare disease ❤