The story of Lis
Hello,
My name is Lis, I live in Norway and I got diagnosed with Olliers disease when I was 1 year old. I’ve had several surgerys and it’s been a bumpy road. I’ve had malignant tumors because of Olliers and had my last surgery last year. The disease affects my leg on the right side. Thanks to the healthcare system I can live a good life with my condition. I really hope there will be more research and that one day there will be a cure also for this rare disease.
Support the research into the causes of Olliers disease and Maffucci syndrom lead by Dr. Nara Sobreira, Asst Professor at John Hopkins. You can make a donation here;