Branchio-oto-renal syndrome,daunes syndrome,joint hypermobility syndrome,normal pressure hydrocephalus

The story of amy

hi my name is amy i have multiple conditions such as branchio-oto-renal syndrome, daunes syndrome joint hypermobilty syndrome, and normal pressure hydrocephalus very young and many more but there not rare just uncommon for my age. I have had a real serious decline in my health this last year and cant get any answers at all hope to find someone in same position as my self.