The story of Barbara
The last thing I remember was getting a bride down the aisle in April of 2002. (we had a full service wedding business). My husband, Chuck, took me to 14 different doctors prior to the correct diagnosis of PAH (Pulmonary arterial hypertension). I was started on oxygen right away followed by a right heart cath to confirm the diagnosis. I raise awareness everyday of the year by wearing a zebra print. My MIL and my SIL died from this devastating disease. Over the years, I have seen so many of my PHriends succumb. When the children die from this rare disease, it’s devastating. I have survivor’s guilt especially when it’s a child.