Apart from the world, Apart with TMAU

The story of Caroline

i always had Anxiety since age 11, growing up i could always sniff an unpleasant odour around me so i grew into a habit of frequently cleaning my surroundings. not knowing it was me whom smelt unpleasant 8 years later. the entire nieghbour hood would be howling my name and i could hear tem say ” i can smell her from inside across the street.” but i just locked myself indoors and cleaned the apartment for hours. id hear she should take a bath or a shower, but when i did id hear get out the shower, or turn the water off,  showering or not showering still the mask odour lingre and haunts me as for those makes people freak out anybody in my surroundings. 

ending of 2019 is when it started, when i was being haunted by a Disease called TMAU. 

i tried killing myself twice because id get called and laughted at behind closed doors not knowing why it had to be me? but whenever people saw me it was like they didnt know about the odour and act clueless or they lie and say “i dont smell anything,” usually excuses helped them flee but i wouldnt blame them, i wish i could use an excuse to run away from this rare disease’ unfortunetly im stuck sharing genes with the smelliest one whom is so everently not shy at all. 

my Name is Caroline. i live in Canada. i want TMAU to be reconized for people living with and without this rare disease, i feel uplifted knowing im not on my own feeling alone, in a world fullfilled with different cultures but yet share stories on a personal birds earview of a disease thats rare.  help is all i ask for and for those like me .

 

*Find others with Trimethylaminuria (TMAU) on RareConnect, the online platform for people affected by rare diseases