The story of J
Alex, aged 19, has an atypical form of the rare disease Infantile Neuroaxonal Dystrophy. It’s a degenerative neurological condition that first presented when Alex was a cheeky year 1 student with a baby brother. By the end of primary school, Alex used a wheelchair and had developed epilepsy. Every day is harder than the last, and Alex now battles dystonia, dysphasia, vision problems and cognitive impairment. But her smile still shines bright, and she is beloved to all who know her.