The story of Remi
Meet Remi Sophia Savioz, a true warrior! Like many diagnosed with a rare disease, Remi has faced a lifetime of challenges. But she refuses to let them define her. With strength, resilience, and an unstoppable spirit, she continues to defy the odds and conquer every obstacle that comes her way.
Diagnosed with Glut1 Deficiency Syndrome (Glut1DS), Remi’s journey hasn’t been easy. But thanks to a dedicated team of medical professionals and service providers, she receives the support she needs to thrive and be the best she can be.
Remi was born to fight, born to win! She faces struggles, but she never lets them hold her back. She is unstoppable. She is a warrior.
Join me in celebrating #WarriorRemi and raising awareness for Glut1DS! Share her story, spread hope, and stand with us in the fight for those living with rare diseases.
#RemiStrong #RareDiseaseWarrior #NeverGiveUp #RemisGlut1