The story of Presley
It’s funny, from the time Pierce was born I knew something just wasn’t right, but I brushed it off as “this is just what it’s like to have a difficult baby.” Pierce never slept good, then about the time he was 3 or 4 weeks old he started crying and never seemed to stop. I was at the doctors more with Pierce than I had ever been with my older two children. The never ending crying got diagnosed as a diary allergy and never looked back into.
At Pierce’s 4 month check up I remember over hearing a mother next to me explain to the receptionist that her daughter had to have open heart surgery, but since surgery she was a different kid. I thought to myself of how hard that must of been in them, I couldn’t imagine having to go through that. Then his pediatrician heard a slight heart murmur. Out of caution we were referred to cardiology. We found out that Pierce had a severe case of Pulmonary Valve Stenosis and Supervalvular Pulmonary Stenosis. If not taken care it could of been fatal to Pierce in the coming years. We were optimistic that a routine heart cath procedure would take care of our problems. Once the heart procedure took place, doctors knew they could not correct his problem and we would need open heart surgery. A few shorts weeks later we were once again sitting in the waiting room worrying senseless about our sweet boy. Luckily everything went extremely well, the surgeon was able to correct all of Pierce’s concern areas, and we were on the uphill slide.
At our 6 month follow up, Puerce still hadnt gained back weight from surgery so we were referred to genetics for further testing. A few weeks later, that seemed liked forever, we were told of our diagnosis, William’s Syndrome. So many emotions and thoughts ran through my mind, and continue to do so, as I think of our diagnosis. I am thankful we have a diagnosis. Atleast now we know of all the health concerns we need to follow up with. But I would be lying if I said I didnt constantly worry about the future our sweet Pierce will face.