The story of Rachit
A COFFEE CONVERSATION WITH MY RARE AILMENT
A Rare Ailment (RA) is identified, that affects fewer people across a broad range of possible disorders. Can You ever imagine (RA) to be a real person in flesh and blood ? Sounds weird isn’t it ?? But I lived this fact in a bizarre dream for an entire night. The winter months aren’t that pleasant for neurological disorders in common and to top it up, spooky-clouded nights accompanied with some harsh drops of rains here and there, froze all my spirits to sleep.
Sometimes, there is so much going around that it feels, the cosmos is made up of stories and not atoms. While snoozing an unknown terrifying voice called my name from behind a dark-non-leafy tree entangled with overgrown weeds and vultures diving in the shadows of the moonlight.
”Who are you?” I asked with a terror-stricken voice not caring about the ambiance.
With a devilish laugh he said ”you recognize me well, I’m a part of both your thoughts & reality virtually throughout the day”. I’m the ‘Rare disease’ you suffer with”.
I was stunned as if every part of me took a pause while my brain flooded with thoughts. Was this really happening ??
Though the aura of time and space seemed mocking holy spirits completely opposite spirituality with an eye to eye sense of paranormal enthusiasm around, but not sure how the moment broke free and injected courage in me. All of a sudden I was representing my community. Memories from the dark tunnels started to flash with how (RD’s) advent became the greatest incident in my life & sealed my fate forever, how I was in the best health-equity until this inevitable ink-color was used to re-write my story, how in a jiffy my health cover seemed insufficient, travelling for leisure appeared farfetched, daily jogs & cycling diverged to weekly walks, consuming carton of medicines was a daily practice, compulsive attendance with doctors than friends was the new normal etc..
I didn’t wait for him to say anything instead poured my heart out, as the one who handcuffed my freedom was right in front of me. This time I wasn’t ready to helplessly give myself away.
Sounds shady but I asked him for a cup of coffee!! In the middle of nowhere!! What if he said a yes…..Oh common, who cares, it was a dream !!
AS WE ALL ARE A GROUP OF CURIOUS KIDS, I started my quiz-show :-
1) Are You an extraterrestrial being, a cult of human sins OR a super villain OR a byproduct of human-imagination?
2) Do you plan to settle on earth or is it a casual visit ? Let me inform that we as a clan are preparing a war against You — does it sound scary ?
3) Do you have a secret mission or some message we humans are unable to de-code ?
4) What’s your idea behind the idea of being friends and use your powers for wellbeing & claim your presence ?
5) Why do you like the art of screaming murder and not gifting life ?
Setting the context for my readers, an unexpected infiltration changed my-being forever in 2016 getting diagnosed with a rare medical condition, Isaac Syndrome (a diverse disorder as a result of muscular hyperactivity), Membranous Glomerulonephritis (a slowly progressive disease of the kidney), Lymes (a bacterial infection that can be spread to humans by infected ticks) and Glaucoma (an eye conditions that damage the optic nerve often caused by high pressure) and the journey continues…..
It was his turn to talk :-
Wow-Wow kid, hold your horses, he said in his roaring voice.
He stated how his ancestors visited our planet since inception. They deepened their roots generation after generation with increasing in shelf-life as our genetic codes gradually became prone to harmful temptations, moving away from mother nature.
I was shocked to hear that he is blood-brothers with Wellness, the major difference in portfolio-responsibilities. One grants humans with the health-bandwidth for being careful and the other grants misery for being careless.
The key to our conversation was the highlight that the cloud of his existence remains over earth as a repercussion of human friendship with the destructive force of Greed.
His last statement compelled me to interrupt and pitch myself ”If I was the master of numerous art like you and was hijacked & crowned as your Chief :- I would remove the difference of language and sprinkle love instead extracting venom, wouldn’t waste these great powers for slavery instead free people from their miseries, would prefer wearing the headgear of mercy to mankind instead deceiving them with pain & destruction”.
Guess What? my alarm clock does it again and the unearthly-coffee-event ended. Though many questions were left unanswered & he never seized my dreams again but I wish to convey my fellow-colleagues that we won’t get anywhere except further belittle our recovery if we stop fighting our freedom, let the pursuer not gain on us.
The overall experience was no myth or a fairytale for me. Spending time with him for sure didn’t go in vain!! as the experience loudly conveyed some lessons :-
1) He is not a faceless attacker, the more humanity is hungry for wrong, the more we shall find him close
2) It’s not the strongest or the intellectuals who survive his attack instead personalities most responsive to change
3) We should ponder on our mistakes and accept them than dwell on what we got right
4) Sometimes ”The Theory of Dreams‘ or our subconscious mind has much more to teach than we learn with open eyes
George Bernard Shaw —“You see things; and you say, ‘Why?’ But I dream things that never were; and I say, ‘Why not?’”
Though this episode is a reflection of my dream but it cannot end this way. I’ll wait till he shows up again to finish the unfinished business.