The story of Boussac Marie
I am 26 years old. Â
My genetic disease was found two years ago in France..Â
I am different. .Â
Every morning i work in an Association for poor people. I give them food and clothes .
I ride once à week. Dune is thé name of my horse.Â
I share my new Life with my boy friend :Samuel. Â
I hope in thé research in USA and in France .if it s not for me .. it will be for thé children of PPP2R5D. .
That is  my Life.. .
Marie .