About United MSD Foundation
Founded in 2016, United MSD Foundation is a registered 501(c)(3) nonprofit organization serving an international community of Multiple Sulfatase Deficiency families, researchers, and care providers. We exist to bring awareness to MSD, fund research toward treatment, and support families through education, resources, and community.
For Rare Disease Day, we have already posted on social media, encouraging our followers to save the date and to visit your website for more information and for downloadable tools to help them spread the word. We will continue to post on social media and will promote the Day in our January e-newsletter. And we always host our Zebra Run for Rare Disease 5k run/walk fundraising event on the Saturday closes to Rare Disease Day. Our 2024 event—which is in-person in Ocean Springs, MS, USA, and also has a virtual option for participants around the world—is on Saturday, March 2.